Creating a Network of Influencers Who Treat an Ultra Rare Disease
A biopharmaceutical company developing an innovative treatment for an ultra-rare disease faced a common problem: very few known clinical and operational experts, and a limited budget for outreach. They needed a strategic way to identify and engage the right HCP stakeholders—but didn’t know where to start.
Task
Creating a Network of Influencers Who Treat an Ultra Rare Disease
for an ultra-rare disease faced a common problem: very few known clinical and operational experts, and a limited budget for outreach. They needed a strategic way to identify and engage the right HCP stakeholders—but didn’t know where to start.
to build a targeted influencer map across all 50 states. Acting as an extension of their internal team, we developed a custom database of immunologists and newborn screening influencers, state by state. These experts often serve as gatekeepers for newly diagnosed patients and were critical to early awareness-building efforts.
Our team continuously updated the database, tracked turnover among key HCPs, and helped the client foster meaningful relationships aligned with their clinical development plan and future educational goals.
a living network of verified HCP influencers, and deeper insight into how newborn screening is handled across regions. This foundation has supported stronger stakeholder engagement and informed upcoming clinical and educational initiatives.